Wednesday, July 22, 2015

If I didn't have a head... might be a bit easier sometimes...
(I literally googled that phrase and found this pic...I thought it was fitting lol)
Now, I don't mean literally.
I do need my head....
but I mean figuratively.
Weeks like last week are much more difficult when trying to "keep your head on."
You see, it started off like any other normal week..
 We all dressed up like cows and got free food from Chic-Fil-A...


(Nothing creepy about baby cows hanging from the ceiling with little parachutes on "Show your cow love day!") ;)
Some people REALLY got into it by rockin' the cow ears too...
(Yes I was randomly creeping on other tables and taking pictures).
Back to my story...
And Dave and Clara had started building what could only be considered a tortoise CASTLE...
(More on that another time)
So we were clearly having a pretty calm week wasn't....
See, I'm not sure you can tell but Corban LOVES to eat (please see below)
however sometimes his little belly isn't as cooperative.
We've discovered he has some major food allergy's which will be interesting as he gets older, but for he time being we had just hopped back to milky milk and thought everything was good!?
I'd taken him into urgent care the previous Friday because he was crying and spitting up more than normal...and they took an x-ray. He had some distension and inflammation but nothing that some gas drops couldn't help they thought. So after paying $600 to be told I need to give my son gas drops, we were on our way....;-P
Well got bad...Corban was projectile vomiting all over our house and while Lunch box enjoyed the little snacks I was starting to get really concerned.
So off to urgent care we went....again.
They took him back for another x-ray but this time they came back with a different tone...
they were sending him to Children's Mercy...immediately.
They couldn't even get the IV in he was so dehydrated...:( I felt like crying for so many reasons....1) because if there was a "worst mother of the year award" I felt like I had earned it for not realizing how sick he was, and 2) because it was like the most horrendous thing in the whole world to watch your little baby have to get poked so many times with no success and 3) Dave was on site with a client in ALABAMA and couldn't get a flight out that late at night!!
But, we thankfully made it to Children's Mercy and the vascular team finally got the IV in after numbing nearly his entire arm because I insisted if they poked him again without doing that...well let's just say Amber 'Mama bear' Guderian was wanting to come out in full force but I just kept trying to be loving also by repeating, 'Amber you keep your head on, Amber you keep your head on'...while Clara kept reminding me "Jesus gave us Corban for a reason and he knows what's happening..." Nothing like your 5 your old calming you down - sooo thankful for that sweet little girl!
So here we are waiting to talk to all the specialists....

(Clara the encourager and puffy faced, trying not to cry me)

The sleeping pumpkin after they finally got the IV in and he started feeling better.
It turns out he was suffering from an Ileus...its some sort of non-mechanical obstruction. They had originally thought his internal organs had twisted and we were going to need an emergency surgery but at some point in the night they ruled that out...THANK GOODNESS!!!
He spent 3 days in the hospital and is now on the up & up ...
Here's the little guy...single and ready to mingle ;)
So, back to my original intro....I realize his situation could have been worse and there are so many sweet kids that have different outcomes than Corban did but it does not change the fact that I literally had to rely on Jesus to "keep my head on" for every moment this past week.
Do you want to know the cool part??
That Wednesday morning, this was the passage of scripture I was learning about...
2 Timothy 4:5 "But you, keep your head in all situations..."
Not even kidding...that was the key verse in my devotional! I love how Jesus does that so much you guys I'm not even kidding. I mean I love Him even when the verse I'm studying doesn't perfectly outline what's to come that day but when it does...I just get happy tears.
I think another reason is I know...10 years ago I simply couldn't handle stressors like this. I liked to drown my sorrows and worries but this you guys....My Jesus = such a better solution!!
So to conclude, next time you want to lose your head, for any reason....small or big....remember you have another option...and that is to not lose it lol. (How's that for a deep thought lol?) ;)
Also, thank you ASHLEY BEAR for picking up Clara at 11 at night when the social service workers told me she couldn't stay overnight with us and would have to go with them...that was another wonderful moment I won't go into right now. ;)
Nighty night!
P.S. Corban has been trying to catch up on all the work he missed last week also so if you need to contact him, please give him 24 hours to respond to your emails. ;)
P.S.S. I realize this was the most hodge podged post ever with 1,000 grammatical errors and changes in thought but while I may have kept my head on during that ordeal, it is still a bit tired and not thinking as clearly as it will be next week when I catch up on sleep!! :)

Monday, July 13, 2015

My Mom = Married! read that correctly! My momma bear tied the knot 22 years after my dad went to heaven.

There she is in a pretty dress that caused my sister (who manages her finances)to nearly quit on her after finding out the cost lol - but nevertheless she bought that dress and it looked soooo beautiful! And if you're wondering who that cute stinker is beside her...Oh yes, it's Ms. Clara. ;) (Please ignore the dump truck behind her lol)
It's such a weird feeling when your mom is getting married...
We were over the top thrilled for her, but it was still strange.
I can't imagine what it is like for children whose parents re-married without a 22 year prep period!? I give all of them an imaginary high five right now because I think that would be super hard.
But the moment arrived and my family excitedly got married that morning...

Here are some other moments....

This is my sista'!
And this is us proving we didn't need a selfie stick lol (we both had little babeeee's recently, only 2 months apart)! :)
There go the cute little flower girls in their cowgirl boots!
And my mom and grandma....
And the moment we'd all been waiting for....
"I do!"
Truthfully, I am a little tired of uploading photo's lol but there was lots of dancing, singing, and laughing at the reception. And best of all...LOTS of cake!! Ummmm! There were actually some pieces that ended up being just that's just pure amazingness!! (I wonder why I haven't lost all my Corban "fluff" yet lol?!?)

So, to close - Happy happy marriage wishes to my mom and her sweet new hubby!!! He is a wonderful step dad and grandpa and I'm so thankful to have him join our little family!

(Here Corban is getting prepped by grandpa Jim to play for the Royals someday!) ;)

Thursday, July 2, 2015

P.O.T.S (Postural Orthostatic Tachycardia Syndrome)

How's that for a title?!? :)
I had completely decided not to discuss this topic on my blog, but something happened yesterday that made me realize someone out there in the bloggy atmosphere might benefit from hearing about this syndrome...
Why am I bringing it up??
It's what I have...
So I will consider myself a minor expert  doctor right now. ;)
Me, Clara and Corban were at a fun little hot spot in KC yesterday called Wonderscope...and I'm meaning hot literally because only 1 room was air conditioned and my clothing was feeling a bit swampy...that's always wonderful, ;-P Anyways, here is Ms. Clara Bear just having some learning fun...


As I was sitting in the snack area, on a happy high from the salt and vinegar potato chips I was eating (ahhh new NOT healthy favorite food alert!) I overheard a new mom say to another mom "that she was feeling very dizzy more recently any time she walked around for longer periods of time." I took a mental note that she had a near one year old little girl with her. I debated if I should be a complete creeper and ask her more questions but I decided against that and instead decided that she probably read my blog since I have 13 page views a month and would help her on here. ;)
No, but actually when I got this diagnosis at Mayo Clinic, I googled everything I could find and only found 2 or 3 blogs about P.O.T.S. back then. (Thankfully I've found there are more now). However, prior to being at Mayo, I'd seen at least 15 doctors in numerous specialties.
Doctor appointment # 326...Clara was there to document it all lol.
Anyways, not one doctor ever even mentioned this as a possibility back then, so here we go....
my very accurate and scientific information about POTS...
It commonly occurs after pregnancy and sneaks up FAST!
If you start feeling dizzy when you walk up stairs, or walk around a while, or just stand can do a simple test at home.
Lay on the floor for 5 minutes and then check your heart rate....stand up and immediately upon standing check your heart rate again. If you notice an immediate increase of 30 beats or more that is a positive sign of P.O.T.S. Another way to check is continuing to stand still and monitor your heart rate at the 1, 5 and 10 minute marks. If your heart has reached 120 bpm after simply standing still for 10 minutes, head your buns to your doctor because you may have this condition.
I also had flu like symptoms at the onset....weakness, heart palpitations, fatigue of my limbs, widespread nerve pain and a sensitivity to the sun/heat. I have NO idea how those all go together but it does relate to your autonomic nervous system not working correctly. However, I will spare you any more details on that front because the link I've placed below has all of that covered - she was my go to blog at the beginning of this journey:
I thought these posters were kindof cute regarding this condition....and accurate.

Before I got sick, I loved to run and typically ran 5-10 miles a week, but literally overnight, I began having trouble even standing for any period of time.
I really am so much better after having Corban; I have no idea why but having his little life sent lots of those symptoms into remission.
(In case you'd forgotten who I was referring to) ;)
 However, back then I did find some relief with a mix of lifestyle changes and medicines. I know each person is different but this is a list of things that truly worked wonders for me back then...
1. Water!
2. Gatorade!
3. Salt!
Those are your lifelines to begin with - anything to keep you hydrated is helpful and while most people avoid salt, it is a miniature miracle mineral to anyone with POTS.
4. Beta Blockers (for the accelerated heart rate)
5. Florinef (steroid to assist with water and salt balance)
6. Midodrine (To treat drops in blood pressure)
That was my perfect concoction and I know that same list helped many other girls I met at Mayo suffering with the same symptoms I was experiencing. I learned after returning that some doctors in KC had never even heard of Florinef or Midodrine, so I'm so thankful to have gotten the opportunity to travel to a hospital that had specialists familiar with this syndrome.
Even now, people who hang out with me will see me sit more often than I stand and every once in a while you may catch me guzzling a Gatorade if I've been walking too long... I sometimes wonder if people think I'm simply being lazy, but then the thought passes and I realize my main goal should be  to not pass out...not to worry about what others are thinking. :)

And, let's be honest...I love that people with various syndromes and conditions always say, "I will not let _________ define me" which is a beautiful thing...but while I will say that P.O.T.S does not define does affect me.
So, to close this exhaustingly long post...I really hope it helps that sweet girl at Wonderscope who I'm sure read this and anyone else who might be randomly googling the word POTS and getting annoyed because pictures of big silver pans keep popping up!! ;)

And now I really better go, because my little "reindeer" is needing my attention lol.


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